The toolkit has the potential to reduce barriers to healthcare and improve healthcare self-efficacy and patient-provider communication.Īdults autism community-based participatory research healthcare interactions primary care. Patients and providers indicated that the tools positively impacted healthcare interactions. The CBPR process resulted in a reliable healthcare accommodation tool and a highly accessible healthcare toolkit. Most of the PCPs surveyed read the AHAT (97 %), rated it as moderately or very useful (82 %), and would recommend it to other patients (87 %). Patients stated that the toolkit helped clarify their needs, enabled them to self-advocate and prepare for visits more effectively, and positively influenced provider behavior. In pre/post-intervention comparisons, the mean number of barriers decreased (from 4.07 to 2.82, p < 0.0001), healthcare self-efficacy increased (from 37.9 to 39.4, p = 0.02), and satisfaction with PCP communication improved (from 30.9 to 32.6, p = 0.03). Almost all patient participants (>94 %) felt that the AHAT and the toolkit were easy to use, important, and useful. Preliminary testing of the AHAT demonstrated strong content validity and adequate test-retest stability. Satisfaction with patient-provider communication, healthcare self-efficacy, barriers to healthcare, and satisfaction with the toolkit's usability and utility responses to open-ended questions. The AASPIRE Healthcare toolkit includes the Autism Healthcare Accommodations Tool (AHAT)-a tool that allows patients to create a personalized accommodations report for their PCP-and general healthcare- and autism-related information, worksheets, checklists, and resources for patients and healthcare providers. Evaluation consisted of a mixed-methods, single-arm pre/post-intervention comparison.Ī total of 259 autistic adults and 51 primary care providers (PCPs) residing in the United States. Toolkit development included cognitive interviewing and test-retest reliability studies. Our goal was to use a community-based participatory research (CBPR) approach to develop and evaluate tools to facilitate the primary healthcare of autistic adults. The healthcare system is ill-equipped to meet the needs of adults on the autism spectrum. 13 School of Medicine, Duke University, Durham, NC, USA.12 Department of Family and Community Medicine, University of California, San Francisco, San Francisco, CA, USA.11 Veterans Affairs Portland Health Care System, Portland, OR, USA.10 Department of Medicine and School of Public Health, Oregon Health & Science University, Portland, OR, USA.Roudebush VA Medical Center, Indianapolis, IN, USA. 9 Center for Health Information and Communication, Department of Veterans Affairs, Veterans Health Administration, Health Services Research and Development Service CIN 13-416, Richard L.8 Regenstrief Institute, Inc., Indianapolis, IN, USA.7 Indiana University Center for Health Services and Outcomes Research, Indianapolis, IN, USA.6 Department of Public Health, Food Studies and Nutrition, Burton Blatt Institute, Syracuse University, Syracuse, NY, USA. 5 Academic Autism Spectrum Partnership in Research and Education, Portland, OR, USA.4 Regional Research Institute, School of Social Work, Portland State University, 1600 SW 4th Ave, Suite 900, Portland, OR, 97201, USA. 3 Academic Autism Spectrum Partnership in Research and Education, Portland, OR, USA. 2 Department of Medicine and School of Public Health, Oregon Health & Science University, Portland, OR, USA. 1 Regional Research Institute, School of Social Work, Portland State University, 1600 SW 4th Ave, Suite 900, Portland, OR, 97201, USA.Konexo is now present in the UK, US, Hong Kong, Singapore and Malaysia. Through creative use of emerging technology and global resources, we connect your needs with real benefits, and your challenges with transformative solutions. Legal, compliance, corporate secretarial and HR services that connect with you in many ways. Insurance and retirement products, insurance distributionĪlternative legal and compliance services developed by Eversheds Sutherland Insurance M&A, reinsurance and restructurings The toolkit is titled: From Commitment to Action: Integrating Sustainable. Personnel records and employee data privacyįinance, financial services regulation and investment productsĪll finance, financial services regulation and investment productsĬommodities & securities litigation and regulatory enforcement The Global Schools Program (GSP) is thrilled to announce the launch of a new toolkit to support practitioners, policymakers, and researchers in creating or adapting curriculum on sustainable development, as well as integrating this curriculum into national priorities. Privacy, data protection and cybersecurityĮxport controls, sanctions and anti-money launderingĬorporate crime / white collar crime and investigationsĪll corporate crime / white collar crime and investigationsĮmployment litigation and dispute resolution
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